Autoimmune Thyroid Disease

An Unfortunate and Lengthy Adventure in Misdiagnosis

Archive for February 2008

Earthquake

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There was an earthquake last night at about 12:56 am. It measured about 5.3 on the Richter scale and about 9 on my “oh my God!” scale. I’ve never felt an earthquake before as I’ve always been asleep. I was awake or only lightly sleeping this time. I knew what it was straight away because the rumbling and shaking was so deep and ominous and grew louder and louder.

A couple of seconds in, my partner rolled over in his sleep. I grabbed his wrist and told him to be still, couldn’t he feel the earthquake? “Are you sure it wasn’t just me rolling over?” he replied. Downstairs the dog whimpered in surprise. I lay there with my heart pounding for ages.

This morning I had a bit of a paddy when the alarm went off loudly, and my partner told me not to have a meltdown.

Written by alienrobotgirl

27 February, 2008 at 7:56 am

Posted in Personal Diary

Failsafe Dense Wheatgerm Bread

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Not failsafe for opioid responders.

One small, dense loaf weighing about 400 grams.

1 cup wheat germ
2 cups strong white wheat flour
1 tbsp baker’s yeast
1 tbsp sugar
1 tsp table salt
5 floz or 150 ml warm water

Add the water to a measuring jug. You can get the water to the right temperature by adding 1/3 boiling water to 2/3 cold water. Add the tablespoon of yeast and sugar and stir. Cover with a cloth or paper towel and put somewhere warm, like the top of a radiator. Leave for ten minutes or however long it takes to get at least an inch of foam on top of the water.

Meanwhile measure and mix the wheatgerm, flour and salt in a bowl. When the yeast is ready, add it to the flour. You may need to add extra water at this point, keep going until you get a nice consistency that isn’t too flaky or too sticky.

Add the dough to whatever tin you wish to bake it in – I recommend the flexible silicone ones for bread this dense! Then put back in your warm spot for as long as you prefer to leave it – anywhere between an hour or six!

When you are ready to bake the bread, preheat the oven to 180 degrees celsius and bake for about an hour.

Best served hot, with a slab of butter on top.

Failsafe Dense Wheatgerm Bread Nutrient Profile

Written by alienrobotgirl

15 February, 2008 at 10:35 pm

Posted in Failsafe Recipes

The Biomed Extremists

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Kevin Leitch is the father of an autistic girl and the author of a blog that I respect. In recent months Leitch has been attacked by the biomed community for speaking out against the vaccination theory of autism, chelation, and vitamin megadosing. One prominent member of the mercury brigade responded by using the name and image of Leitch’s autistic daughter in emotive propaganda against him, at which point Leitch stopped blogging for a while, because much as he could cope with abuse directed at him, bringing his daughter into things was inappropriate. This is always a risk that internet debunkers have to take. When you start threatening people’s intensely held religious beliefs, it really upsets them.

In a blog post today, Leitch questions the behaviour of parents and DAN! doctors who experiment on autistic children. It is worth a read. I’ve seen stories like the ones that Leitch mentions over and over again on yahoo groups.

It’s very painful to visit those biomed forums and start reading the things that these parents are doing. When I read about the huge doses of vitamins and the chelation chemicals they are using, I get very angry. The parents even know that their children almost always respond negatively to these supplements, but they still give them because they are so desperate for their children to be ‘normal’. People seem think it’s okay, because these parents are trying to cure their ‘monstrous’, children of a ‘devastating disorder’ that will ‘ruin their lives’. I hate this attitude. If those children were neurotypical, their parents behaviour would be considered child abuse.

You see, I have been there as an adult with unofficially diagnosed asperger’s syndrome. I have willingly spent thousands of pounds experimenting on myself with supplements. I know what it feels like when you give an autistic child these supplements. People think that vitamins are harmless, but they are not. Especially not when you have a balance of neurotransmitters as sensitive and delicate as an autistic. During the last few months alone I’ve given myself a limp in my DVT leg with vitamin K, I’ve given myself serotonin syndrome with riboflavin, I’ve amined myself with folate and given myself a resurgence of eczema that took two months to clear, I’ve glutamated myself with B12, and I’ve given myself brain fog with B6. Sulphites – which cause the same reactions in autistic children as sulphur based chelators do – make me feel like death. You may as well bring back smacking, at least that’s a short-lived pain.

One might assert that most of these parents must be autistic themselves due to their complete failure to empathise with their children. Talk about pygmalion syndrome. Is it only ever neurotypicals who want autistic people to be normal? Or are some parents so afraid that they might be autistic themselves that they have to hate autism and find reasons that it isn’t genetic? Is this like the myth of the closet homosexual who is the most publicly homophobic person? I think thee protest too much?

An example of the paranoia and lack of medical knowledge in these groups is demonstrated in one of the messageboard quotes Leitch came across:

The past few days he’s had white chunks in his stool. Loser than normal stools, very light in color, almost like mustard with dark specs. DAN doc says yeast does NOT come out in poop … then what is it?

What is it with this dirty fascination with stool that the yeast/parasite/bacteria/SCD/GAPS people have? My dog does craps like this when he eats nothing but fat meat. Does that make him autistic?! Is he dumping yeast?! No! The white lumps people spot in poo are not ‘balls of candida’ or anything else alive. They are undigested fats that have saponified (turned to soap) due to the normal presence of hydrochloric acid in the stomach. The colour of poo is determined by how much chlorophyll and haem (heme) you consume, as well as whether you are breaking down your own haem into bilirubin. It’s no big deal. I’ve known people freak out and stop doing failsafe because their poo went yellow when they stopped eating so many greens and so much aged red meat.

Leitch links to an old post of his where he describes a mother who is chelating her autistic son. This post contains a video which people should watch. I don’t think many people actually know what an autistic child looks or sounds like. You will be struck by how normal this little boy is. He sits quietly for two hours and writes down bus timetables on a board to keep himself amused. Is that something that needs ‘curing’?

This post demonstrates such a great example of a typical mercury-mom approach. Check out the boy’s lab report at the bottom of the page. Virtually every heavy metal is in the low-normal range, except for aluminium and lead, both of which are only marginally over the normal range. This is clearly not a case of heavy metal poisoning, but people are so fixated on heavy metals being the cause of autism that they ignore the evidence before their very eyes.

Written by alienrobotgirl

15 February, 2008 at 8:57 pm

Thanks to failsafe

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Today I took Jasper out to the Longshaw Estate on the edge of the Peak District. Jasper needs an hour of exercise every day now. We wandered around the moorland and I decided to head off the path and cut across country to find a freshwater spring marked on the map. We wandered into some quite boggy ground downstream of the spring. There were lots of little gurgling brooks cutting deep paths through the peat. It was quite strenuous going and a fair bit of leaping and scrambling had to be done between the streams, through the reeds, and over the hummocks of grass and boulders. It occurred to me that I would not have been able to do this walk two years ago. I would have been wiped out for the rest of the day.

Written by alienrobotgirl

15 February, 2008 at 2:22 pm

Posted in Personal Diary

Tagged with

Failsafe Pears and Cream

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Not failsafe for very sensitive opioid responders.

To serve one.

1 pear
4 floz of double/heavy cream

Chop the pear into small cubes and add to a pan with the cream. Heat for 5-10 minutes. Add a touch of vanilla if tolerated.

Failsafe Pears and Cream Nutrient Profile

Written by alienrobotgirl

9 February, 2008 at 9:47 pm

Posted in Failsafe Recipes

Failsafe Rice Pudding

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Not failsafe for opioid responders unless A2 cow’s milk, goat’s milk or sheep milk is used.

To serve one.

2 oz white rice
1-2 cups of milk
1 oz butter
1 tablespoon of sugar, or to taste

Quick method:

Add the rice and one cup of milk to a covered pan. Bring to the boil watching carefully that the milk does not boil over. Simmer on a very low heat for roughly twenty minutes, then add the butter, and sugar to taste.

Slow method:

Add the rice, two cups of milk and other ingredients to an ovenproof pan and place in an oven on about 160 celsius for an hour to an hour and a half, checking every half hour, until the milk has evaporated and become thick and creamy.

Use whatever short grain brand of rice you tolerate. The recipe works well with sushi rice as well as pudding rice. Goat’s milk can be substituted for cow’s milk. You may also add a touch of vanilla if tolerated.

Failsafe Rice Pudding Nutrient Profile

Written by alienrobotgirl

9 February, 2008 at 9:34 pm

Posted in Failsafe Recipes

Failsafe Basic Quiche

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Not failsafe for opioid responders.

To serve four.

For the shortcrust pastry:

1 whole egg
2 oz butter
4 oz flour

Put the flour in a mixing bowl and cut the butter into it, then rub the two together with fingers until the mixture is a fairly consistent breadcrumb texture. Break the egg into a second bowl and whisk together. Add the egg to the butter and flour and mix together with a wooden spoon. When solid, kneed with hands. This mix tends towards the sticky side, if so, add another flat tablespoon of flour. Wrap the pastry in cling film and put in the fridge for half an hour to an hour. Then roll out with the aid of a dusting of flour and press into your quiche dish.

For the quiche filling:

5 egg yolks
1 whole egg
1-2 cups of double/heavy cream (depending on size/depth of quiche dish used)
Salt

Separate the five egg yolks and mix together with the whole egg. Add at least half a pint of cream and mix together. The total cream you need depends on the size and depth of the quiche dish you use. More cream can be added and mixed in situ.

Add any other flavouring ingredients to your dish that you tolerate in small amounts – for example, a finely chopped, sweated leek, a rasher of fried bacon, etc. Add these to the quiche dish and pour the eggs and cream over. Top up with extra cream if required, making sure to mix in.

Bake in the oven for thirty minutes on 200 degrees celsius. If you tolerate a small amount of mild cheese, grate some and add ten minutes before the end of the cooking time.

If you don’t tolerate any flavouring ingredients at all, the quiche can be converted to a custard and can be sweetened to taste.

Failsafe Basic Quiche Nutrient Profile

Written by alienrobotgirl

9 February, 2008 at 5:56 pm

Posted in Failsafe Recipes

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