Autoimmune Thyroid Disease

An Unfortunate and Lengthy Adventure in Misdiagnosis

Fibromyalgia and food chemicals

with 4 comments

Here is a Wikipedia article on simple aromatic rings.

Note that purine, the substance that causes gout, is a simple aromatic amine. Naturopaths are forever recommending vegetarian diets to gout sufferers. What they actually need is a low purine diet.

There is another interesting connection with fibromyalgia here. Guaifenesin is a classic anti-gout drug that increases excretion of purines.

It is also being used in an experimental fibromyalgia treatment protocol that appears to get good results. The guy who is in charge of this protocol, Paul St. Armand MD, is convinced of the theory that fibromyalgia is a genetic condition caused by calcium/phosphorous imbalance (too much phosphorous). I’ve never been convinced of this theory, but lets go along for the ride.

The guai protocol is thought to be “blocked” by use of salicylates, and St. Armand puts a great deal of emphasis on avoiding aspirin and salicylates that can be absorbed through the skin and breathed in, as they are much larger in quantity than the quantity found in foods, which ridiculously he regards as completely unnecessary to avoid.

However, phosphorus balance is regulated by the parathyroid gland and would be fixed with PTH (parathyroid hormone) or calcium supplementation, not necessarily guaifenesin, and this would be easy to prove with a few obvious experiments that St. Armand hasn’t done.

I think St. Armand is being misled by assuming that the mineral balance is the underlying causative factor. I think that if (a big if) guai actually works for fibromyalgia, then the reason guai works has more to do with this salicylate-free protocol than anything else.

After the last four weeks, I am absolutely convinced that my fibromyalgia is caused by food chemical intolerance. Because I’ve recovered.

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Written by alienrobotgirl

27 March, 2006 at 10:26 am

Posted in Quacktitioners

4 Responses

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  1. bs”d

    Fibromyalgia has such a broad range of symptoms, that other syndromes and diseases can easily be diagnosed as Fibromyalgia, when in fact, the cause is different. The only way to be objectively diagnosed for Fibromyalgia, for the present, is via Dr. St. Amand’s mapping technique. He has trained my practitioners across the country on how to do evaluate via mapping, and he has a video available which makes the technique clear. Nothing like person to person training for this, however.

    If one understands that eating foods with normal, food level salicylates is fine, due to the fact that the food must bypass the liver before getting into the blood stream, then one can understand why food based salicylates are fine. However, herbal supplements, which are meant to overwhelm the liver (otherwise they would have no medicinal effect) can’t be taken with guaifenesin, or the salicylates will block the guai. Same with topical. I haven’t read that Dr. St. Amand is concerned with breathing products that contain salicylates. Perhaps essential oils? I don’t recall reading anything about that, but I could have forgotten.

    While I’m happy you have found the cause of your illness and dealt with it, if the syndrome was caused by the excessive deposition of phosphates, then simply removing offending chemicals and foods would not have been enough for you. There are many, many people who have successfully followed Dr. St. Amand’s protocol, and have their lives back thanks to him. He is a superbly qualified endocrinologist, and has been treating his patients with one version or other of this protocol over the last 40+ years. The best evidence is success. Dr. St. Amand claims an 80% or better success rate in completely reversing the debilitating symptoms of Fibromyalgia in his patients.

    What works for you may not work for others. I would advise against ridiculing something just because it didn’t apply to you. There will be research coming out soon that will tell us more about Dr. St. Amand’s theories, if they’re correct or incorrect, if the Guaifenesin works and if so, why…

    I wouldn deter people from trying this protocol. The down side is so minimal, and the potential benefits are life changing.

    elyakatz

    4 May, 2008 at 10:38 pm

  2. Hi Elyakatz

    I was diagnosed with fibromyalgia by some of the top experts in the UK. My entire family were diagnosed. We were mapped, and we had tenderpoints. We were also muscle biopsied, tested for everything under the sun from lyme to exotic foreign diseases, and we even paid for tests to find out of our blood platelets were shaped like cornflakes (they were).

    Normal food levels of salicylates are not fine. They cause my fibromyalgia symptoms to flair up.

    Your comment sounds like an advertisement for guaifenesin. It does not seem unreasonable to me that a drug like guaifenesin, which has a variety of neurological effects, is an analgesic, has been used to treat asthma, is an anticoagulant, and is a skeletal muscle relaxant that slows nerve impulses, should have positive effects on fibromyalgia without it having anything to do with phosphates.

    “I would advise against ridiculing something just because it didn’t apply to you.”

    It does apply to me, and I was not ridiculing anything. I was offering a logical critique. There is a difference.

    “Dr. St. Amand claims an 80% or better success rate in completely reversing the debilitating symptoms of Fibromyalgia in his patients.”

    Then why hasn’t he published a proper scientific trial? With claims like that, it would not be hard for him to find volunteers.

    You appear to be trying to invalidate me. I’ve had enough of that from mainstream doctors, without alties telling me there is nothing wrong with me either, just because I don’t fit into their predefined theories.

    I found this article to be most informative.

    alienrobotgirl

    10 June, 2008 at 1:53 am

  3. bs”d

    Not advertising. I just like to toss out ideas for others to consider. No one is forcing anyone to do anything here. It’s all just ideas. I think the routes you’ve taken are interesting too.

    I’ve concluded that there are many causes to the syndrome known as “Fibromyalgia”. Some may be fit in Dr. St. Amand’s theory, and so I like to let people know. Other folks have different root causes, and so, his protocol won’t work for them.

    Be well,

    Elya

    elyakatz

    10 August, 2008 at 9:52 am

  4. bs”d

    BTW…I am most definitely into invalidating anyone regarding their own health. No one understands their body better than the owner. Sorry if that’s how I came across. I really believe the Guai Protocol, but I also know there are many paths to good health.

    elyakatz

    10 August, 2008 at 8:56 pm


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