Autoimmune Thyroid Disease

An Unfortunate and Lengthy Adventure in Misdiagnosis

Posts Tagged ‘WAPF

Support forums and netiquette

with 9 comments

I feel a lot better since I stopped posting on the FailsafeNT support forum a few months ago. Not physically, but mentally. When you are virtually housebound (in my case through preferred hermitdom), the internet provides a link to the outside world, and you can get very attached to people you have never met. I allowed FailsafeNT to take up a large part of my time and my thoughts, so when it all boiled over a while back, I was very upset.

This is going to be a very frank post. In fact it qualifies as a rant.

I don’t have a very high tolerance of stress. Being part aspie, part alien, I find people stressful full-stop.

FailsafeNT was my way of interacting with people who came from a similar perspective as me, so I only found it moderately stressful. Most of regulars on FailsafeNT are lovely and I enjoyed helping them with their diets. I made two very good friends whom I like a lot. I found demolishing various altie theories about FCIS (food chemical intolerance syndrome) fairly tiresome and I often felt frustrated that people couldn’t figure out the differing worth of various theories by themselves. But I accepted it as part of the job. However, sometimes the wrong person comes along and turns something that was only moderately stressful into something that is utterly unbearable, especially when that person is a senior WAPF member.

The thing is, some people can be over-emotional and take everything personally. Some people have never had the self-discipline or imagination to do the failsafe diet properly, despite having obvious FCIS reactions like eczema to both amines and salicylates. Some people have systems in place in their brain that do not allow them to think they have a food chemical problem, because they believe that food chemical problems are ‘unnatural’ or ’caused by vitamin deficiencies’ or ’caused by gut bacteria imbalances’. Some people ought to act on their intelligence rather than on their learned emotional responses.

People with FCIS – especially those on a very high chemical WAPF diet – can be very volatile and moody and generally act like the Anthony Colpos of this world. For some reason this seems to be particularly true of men. If you criticise something they say you can dent their ego and they will take it as a personal affront. They will start attacking everything you post on every subject. Off come the gloves and out come the politics and religion. Before you know it, you are being attacked for daring to suggest that evolution did, in fact, happen (rather an essential prerequisite in any scientific discussion of genetics), or you are being called a genetic ‘defective’ and how dare you be ‘political’ by couching genetic polymorphisms in such neutral terms as ‘polymorphisms’ when you are clearly a mutant.

Sorry, I must calm down. I seem to still be stinging.

You can win a lot of respect on a forum for being a big man, for being volatile, aggressive, patronising, and using long words in combinations that other people don’t understand, even if what you are saying doesn’t make logical sense. However, you can also make people afraid to answer you back.

You can also cause a number of people who are disgusted with the unfolding argument to quietly unsubscribe from the forum.

I don’t want to post in this kind of environment. It wastes my time, it wastes everyone else’s time.

I have decided I do not want to go through it again. For the sake of my mental and emotional health.

If you really thought the only reason I disappeared from the internet for five months last year was to renovate a house, then you don’t read the FailsafeNT forum.

I no longer want to interact with the individual(s) in question. I gave up trying to post some sense into the complete lunatic asylum that is the native-nutrition forum about a year ago for the same reason – two aggressive individuals who just became too much for me to cope with.

I don’t know why I ever bothered posting on native-nutrition in the first place. At the time I first started posting I was under the impression that WAPF was a more scientific organisation than it actually is. But it turns out that the things the general membership believe in are rather different than the things the WAPF magazine and website publish. Like flies to excrement, when faced with a choice between science and mysticism, native-nutrition members always go for the theory that smells most like BS. Law of nature.

WAPF no longer attracts scientific minds, and even the scientific minds who are there appear to be deeply religious and somewhat warped. WAPF has always leaned towards the altie, but in the early days when I got involved, WAPF spent most of their time critiquing the poor science that surrounds animal fat in the diet. This was the only reason I respected WAPF. But that isn’t WAPF anymore. WAPF is outright altie lunatic nonsense and fermented foods and GAPS diets these days (excuse me, where did Weston A. Price even mention fermented foods?).

Hence I am no longer a member, and it was becoming a contradiction for me to run a failsafe forum associated with WAPF. I’m sure I’ll elaborate on my reasons for leaving WAPF some day when I’m angry enough.

I no longer want to be a conduit for individuals with FCIS to discover WAPF. As long as Sally Fallon keeps avoiding the truth and promoting the misery of the GAPS diet to people with autism and ADHD, that will only be deeply harmful for them. The same goes for the promotion of raw milk as a cure for milk intolerance.

Meanwhile FailsafeNT has gone to seed and everyone has a crazy pet theory about the ‘real’ reason they are ill that could be demolished easily by any properly trained doctor. People who should have been told to STOP EATING AMINES are still eating amines. I feel this was inevitable. Ever since WAPF put a link to FailsafeNT on their website, a steady stream of alties have been joining the group and now there is nothing to hold them back. I await their reign of fermented cabbage and coconut milk kefir terror with an eager dread.

Sorry, am I doing that ranting thing again?

I will no longer link to any WAPF related websites. In fact, I won’t talk about them anymore.

Do I feel bullied off FailsafeNT? Hmmm.

There is a silver lining in every cloud; this particular silver lining being that I’ve been able to get on with my life. In the last few months I have become much happier and calmer, I’ve taken up fiction writing again, and I’ve almost finished the first draft of my novel. All the pressure and responsibility I felt I was under have dissolved. Instead of spending my day worrying about getting back to someone about something complicated and puzzling that they’ve posted and knowing they probably won’t like what I say, I spend my day thinking about the next scene in my novel, and it is so much more fulfilling. Partly because there are no people involved, at least, no real ones.

So for you who know who you are, here’s my last word and a beginner’s lesson in netiquette:

  • Rule 1: Remember the human. Remember you are talking to other human beings who have feelings. It is easy to forget you are talking to real people when you are online. By saying unpleasant things you could hurt them, perhaps more than you think.
  • Rule 2: Adhere to the same standards of behavior online that you follow in real life. Think before you post. Would you walk up to someone in the street and say that? Don’t be rude or aggressive, remember your manners, and don’t deceive people about your identity or condition.
  • Rule 3: Know where you are in cyberspace. Acceptable behaviour in one forum is rude in another forum. For example, don’t promote religion on a science forum. Don’t talk about chocolate puddings on a weight loss diet forum. Don’t go into a failsafe forum and call people defective and FCIS unnatural.
  • Rule 4: Respect other people’s time and bandwidth. Try not to bore other people with your rants and whines, they don’t want to spend hours of their time replying to your voluminous arguments. Don’t spend eight paragraphs saying something that could be said in one, or nitpick over every single irrelevant detail of someone’s post just because you are angry.
  • Rule 5: Make yourself look good online. Make yourself look your best, check your spelling, and make sure what you say actually makes sense and has reliable references before you post it. By the same standard, admit when you are wrong.
  • Rule 6: Share expert knowledge. If someone has a question you know the answer to – answer it, and answer fairly, not with prejudice. Don’t spend your time demolishing fundamental science just because you have a pet theory you can’t let go of.
  • Rule 7: Help keep flame wars under control. Be friendly, be polite, and smooth over differences instead of antagonising people and trying to humiliate them.
  • Rule 8: Respect other people’s privacy. Don’t pester people or come onto their forum and harass them if your attention isn’t wanted.
  • Rule 9: Don’t abuse your power. Knowing more than others doesn’t give you the right to take advantage of them. Don’t try to dazzle people with fake science and long words. It doesn’t make you look good. Instead explain concepts clearly in layman’s terms so everyone can follow the conversation.
  • Rule 10: Be forgiving of other people’s mistakes. Don’t make them look stupid or humiliate them. If it’s important, let them know politely and gently rather than trying to show them up. It doesn’t make you look good to make other people look stupid (especially if you turn out to be wrong).

Now read a longer version of the rules of netiquette.

Written by alienrobotgirl

1 July, 2008 at 12:19 pm

Posted in Personal Diary

Tagged with ,

'Natural' versus 'unnatural' MSG

leave a comment »

Much as I respect the Truth in Labeling Campaign and similar consumer-led campaigns to remove various additives from food, they are consumer-led rather than science-led, and they do not have a full, scientific understanding of adverse reactions to foods. As a result they can talk absolute nonsense sometimes.

In the 18 years during which the Truth in Labeling Campaign has extensively studied the subject of monosodium glutamate and the many hidden forms of the reactive component of monosodium glutamate, we have concluded that there is likely more than one biochemical mechanism that causes adverse reactions in MSG-sensitive people. However, we believe that the most common reason for adverse reactions may be an intolerance for one or more of the contaminants that invariably are produced when glutamic acid is freed from protein through adulteration, processing and/or fermentation.

If a food ingredient is untreated, unprocessed and unfermented, even if it contains free glutamic acid, it will only contain L-glutamic acid because higher organisms contain only L-glutamic acid. There will be no contaminants. Consequently, MSG-sensitive people can typically eat tomatoes off of the vine even though they contain free glutamic acid (umami), providing that they are not overripe, and cheeses such as Reggiano Parmesan that are made from raw milk rather than pasteurized milk or milk that has been cultured, and that are made from rennet rather than enzymes. Give the same person a domestic cheese made from pasteurized milk, cultured milk, and/or enzymes and an adverse reaction will often follow. (possibly, any processed free glutamic acid (MSG) from fermentation of Reggiano Parmesan cheese is below the tolerance level of most MSG-sensitive people.) MSG Update – “Natural versus manufactured umami” in Wise Traditions Spring 2008

Sometimes I wonder whether the frequent apologist inserts like this that I find in Wise Traditions articles are planted there because someone has specifically asked for a “Weston A. Price Foundation friendly” answer that justifies the organisation’s many mistakes on what constitutes a healthful food that does not harm sick people.

It is certainly true that there is more than one biochemical mechanism for MSG sensitivity. Glutamate intolerance like other food chemical intolerances are multifactoral and very complex, occuring on a continuum from high tolerance to low tolerance, with different individuals affected with different symptoms.

However the idea that there is a difference between ‘natural’ and ‘unnatural’ MSG is of course, utter rubbish. In the stomach monosodium glutamate rapidly dissolves into sodium cations and glutamate anions. Glutamate is the anion of L-glutamic acid. The form glutamate occurs in – whether glutamate or glutamic acid – is not in the slightest bit important as the difference is purely a matter of electrical charge and can change at will. For all intents and purposes the form of glutamate found in artificial additives and in natural wholefoods is absolutely identical to the body.

The idea that people can react to a naturally-occurring compound is obviously a matter of confusion for the author of this article, hence in comes the theory that instead of reacting to MSG, people must be reacting to a mysterious ‘contaminant’. The idea that MSG-sensitive people can eat these naturally-occurring glutamates safely is downright wrong and very bad advice to give to glutamate sensitive individuals. I assure you that people are not reacting to mysterious artificial contaminants, they are reacting to MSG. Comprehensive elimination diets and blind capsule challenges performed by the Royal Prince Alfred Hospital have long confirmed MSG reactions. The same reactions are seen in individuals who eat foods that contain natural glutamates in isolation from other food chemicals – like peas for example, which do not contain amines or significant amounts of salicylates. Mysterious-contaminant-paranoia is a phenomenon I encounter often in individuals who are not educated on food chemical intolerance and have not sorted out what they are reacting to and what they are not reacting to.

People create all sorts of funny rules in their heads for why they might be reacting to one food and not reacting to another. Perhaps this author has discovered that he can tolerate a certain brand of cheese. Cheeses from small producers are often not aged for the same length of time or as flavour-refined as mass-produced cheeses, purely due to time and space constraints. It’s quite possible the author got lucky and found a relativley low glutamate Parmesan cheese. It’s also quite possible that people who have these strong beliefs about ‘natural’ foods being pure still have an unusual reaction but blame it on something else they have eaten. People tend to try to prove their beliefs rather than challenge them. This is called confirmation bias, and the Truth in Labeling website is full of these kinds of mistakes. Unfortunately this does nothing for their cause, as any misleading statements or distortion of the facts makes one look less trustworthy to those in the know including those on the opposing team.

Further, people who obsess over a problem with one particular food chemical rarely see the bigger picture. They may observe that they have reactions to foods when they go out to eat, and always blame this on the presence of MSG in those foods (just as people on the GFCF diet blame all of their eating out reactions on ‘hidden gluten’), when it is likely the foods contain a number of other reactive additives, and be relatively higher in other natural food flavour chemicals like amines, salicylates and SLAs. People rarely just have reactions to MSG and natural glutamates alone, usually they are also somewhat sensitive to other food chemicals due to cross-reactivity as different chemicals can trigger the same biochemical pathways in the body.

The article also contains the following contention:

In this writer’s interaction with countless MSG-sensitive people over more than 18 years, I have only communicated with three people who contended that they could tell when MSG was in a food preparation. However, their method of identification was a feeling of an electrical charge, a tingling on their tongue, rather than an actual taste.

I can taste MSG. Why can’t these people? MSG has a very strong, monotonous flavour a bit like salt. It is a strong meaty taste, but without any nuance or subtlety. I find it unpleasant as it tends to drown out all other flavours. This is probably why it is used by manufacturers, because it disguises off-flavours as a result. I can taste glutamate in processed foods, and I can taste it in old meat, cured meat, and in stocks and broths.

If it is true that these people cannot taste MSG, then the reason these people can’t taste MSG is because they don’t know what to look for. They are so used to eating foods that contain natural glutamates and other strong flavours that MSG containing foods do not taste strong or unusual to them. Fresh meat is relatively tasteless compared to the vacuum packed or hung meat most people eat these days. They are probably also used to reacting to foods that do not contain MSG but contain other reactive chemicals which do not have an MSG taste – for example, one cannot taste food colourings or histamine, and reactive SLAs have many different flavours. Only on a comprehensive food chemical elimination diet do people start to be able to taste the difference between foods that will cause adverse reactions and those that will not.

Written by alienrobotgirl

4 May, 2008 at 2:13 pm

Posted in How to be Scientific

Tagged with ,

Autistics: highly evolved

leave a comment »

Following on from the two genetic theories of autism I’ve discussed before, and the questioning of the odds involved in new mutations causing autism, here’s a little more news that slipped under the radar recently.

There is a new wrinkle to the genetic research however. Based on family studies, scientists have long characterized autism-linked genes as “heritable.” But recent research shows a surprisingly large number of mutations tied to autism are “de novo” glitches that arise spontaneously in children whose parents don’t carry them.

Such spontaneous mutations have come to light by studying so-called “structural changes” in the genome, which, if DNA’s chemical letters were arranged in book form, would consist of largish mistakes such as duplicated and missing pages. A recent study that got much less attention than the Poling story showed that 7% of kids with autism carry structural changes not found in their parents, compared with less than 1% of such glitches seen in the general population.

“This is really exciting, and a lot of people haven’t picked up on it yet,” says geneticist Stephen Scherer, a co-author of the study at the Hospital for Sick Children in Toronto.

It’s likely that many more such changes will be linked to ASDs as researchers examine a wider array of cases with new gene-scanning tools. Some researchers even theorize that the majority of autism cases stem from such spontaneous mutations.

Why would genes linked to autism be so mutation-prone?

Consider a mutation on chromosome 16 recently tied to autism. The glitch is in a DNA region containing so-called “morpheus” genes, which changed very rapidly as evolution produced ever brainier apes. The genes may well help shape cognitive capacities specific to apes and humans, including ones affected by autism.

Since fast mutation goes hand in hand with fast evolution, it’s likely that the new autism-linked gene lies in a DNA “hotspot” prone to spontaneous mutation. In short, the same phenomenon that helped to rapidly evolve our braininess may contribute to autism. Tracing autism’s roots

So first off – the ‘surprisingly large number’ of de-novo mutations in autistic children has now fallen from ten percent to seven percent (7%) of autistics versus 1% of the general population. The vast majority of autistics aren’t involved in this process.

And second – try as I might, I can’t find any evidence that mutations in Morpheus genes are affected by DNA methylation, transposons, or anything else. This seems to be an effect entirely independent of dietary folate and blah blah blah during pregnancy. In fact, it appears to be an inbuilt evolutionary mechanism for increasing brain power.

It seems that in this case the far-out New Age beliefs that autistics are ‘crystal children’ who are ‘the next stage in our evolution’ are less far-off the mark than WAPF member’s judgemental beliefs that autistics are ‘Pottenger’s children’ whose DNA has been ‘damaged’ by their parents diets.

Written by alienrobotgirl

26 April, 2008 at 12:59 pm

Posted in Autism Genetics

Tagged with

GAPS: a pile of…

Dr. Natasha Campbell-McBride, quacktitioner extraordinaire and author of Gut and Psychology Syndrome (GAPS) believes that salicylates and SLAs are ‘high in antioxidants’ and ‘help the body to detox’. Apparently ADHD and other behavioural symptoms are the result of the ‘detox’ which is of course ‘good for you’. She recommends a gluten-free, casein-free, high salicylate/amine/glutamate diet to ‘cure’ autism and ADHD.

I came across a few blog posts from some poor soul who has been duped into doing GAPS by the bloody idiots at the Weston A. Price Foundation for various symptoms of ill health that rightly ought to be treated with a hospital monitored failsafe elimination diet. I’ll run through the sorry tale:

I had no idea that doing the GAPS diet would be so hard for me and on my family. I have lived without gluten for almost two years and dairy for 6 months so I thought…”hey I can live on soup for awhile”….hahaha….yeah right! I totally underestimated the power food has over my life and the power of the bad bacteria in my gut. This has truly been the hardest week of my life (besides giving birth).

[…]

I belive the reason this has been so hard for me was because my body had great difficulty expelling the toxic waste from my body (constipation) and going into the diet thinking that I would be able to add new things quickly.

When I began feeling some constipation issues I immediately noticed my skin starting to itch terribly (I think the toxins were trying to get out any way possible), my nursing daughter woke up with bumpy skin rash/eczema, and I experienced severe mood swings and terrible gas. I literally felt like the dead bacteria in my body were producing some sort of gas that was rocketing into my brain. I almost went to the hospital yesterday to get on anti-depressants. I was really starting to freak my self out. Thankfully my husband has been supportive but there has been some very hard times for us all. Oh another thing….my 12month old wakes every two hours at night crying. I’ve tried letting her cry herself to sleep but she literally continues to cry for hours so I finally go in to nurse her and she sleeps for a few hours and wakes again. This type of sleep is NOT good for either of us. In case we were not already feeling crappy, now we are purely exhausted. This is enough reason for me to want to get us better. I know her sleep troubles are diet related. I’m starting over

Despite this appalling and perhaps even dangerous reaction to the diet, this poor woman persists:

It has been a solid two weeks since beginning our probiotic Bio-Kult by Dr. Natasha Campbell McBride. And at least 4 weeks since beginning the GAPS diet of bone broth soups, veggies, meat, beet kvass, ginger tea, fermented veggies, ghee galore, coconut oil, cod liver oil, some nuts, apple/pear sauce and fresh veggie juices.

Could this diet be any higher in food chemicals? I can just imagine what they are going to do to this poor woman.

I’ll list the positive improvements for Ani and I first: I’ve gained 12lbs, Ani only wakes twice a night and my bowel movements are pretty regular, coming once a day.

Because I began with two bio-kults per day and lots of coconut oil (major candida killer), Ani and I have had head cold type symptoms for last two weeks. Yesterday I began only taking 1 capsule per day and really cut down on the coconut oil. Today we both seem better but I really have to stay consistent with detoxing. We drink a small glass of fresh carrot/celery/beet/cilantro/garlic juice after waking (btw….beets are the best liver cleansers in the world, cilantro is known to expel metal toxicity and garlic kills bad bacteria), I’m drinking lots of beet kvass, and bone broth with ginger (another powerful anti-microbial) and of course eating lots of soups!! Despite these measures, I’ll admit that both Ani and I have die-off coming out of every area in our bodies. Ani has eczema on her legs and neck, she has a runny nose, watery eyes, and some emotional issues every so often. I have a runny nose, my ear aches a little, sporadic mood swings, and exhaustion.

You would think that these classic food chemical intolerance symptoms would clue this poor woman in that perhaps she should avoid these unpleasant and reactive foods. Her child has broken out in eczema for heaven’s sake. But no:

But these are all good signs really, because they present that things are taking place internally. They show me that I really need to work on my liver health and encourage the bad bacteria to be flushed out before traveling into my blood stream. I’m amazed that one capsule of bio-kult is doing so much when Dr. McBride encourages working up to 8 capsules per day and then tapering back down to 4 for maintenance. I’m also amazed by the power of coconut oil in killing candida.

With all my discoveries on this diet I really am beginning to think that probiotics should be slowly administered after a few weeks eating an SCD or anti-candida diet otherwise there is too much die-off at one time causing the body to be overloaded with toxins.

Well anyways, I must end by saying that I’m so happy to be getting better even though at times it seems like we are just suffering. Detoxing and Die-off

The alleged ‘power of coconut oil in killing candida’ is actually this poor woman experiencing horrible physical reactions to coconut oil, which are brought on because it is very high in salicylates and SLAs. In the cult of candida-land, this translates as being ‘a herx’ and ‘it means you are getting better’. I am just amazed how people do such horrible things to their bodies and still think they are doing themselves some good.

What happens a week later?

Though, I thoroughly love Dr. Natasha Campbell McBride and her work and her probiotics, I have currently disowned her procedure for healing leaky gut. Why? A few reasons, firstly, doing the diet as well as the probiotics (even in the tiniest amount) was too harsh on my body. Maybe a young child who has not had candida for very long could handle her method very well but for my own damaged gut, my body had difficulty expelling the toxins. Instead, the toxins were hitch-hiking through my blood stream. And somehow into my nursing daughter’s system too.

The author has been recruited by bonkers Bee Wilder and her anti-candida diet and is now eating a high fat, low carbohydrate diet. The diet is lower in food chemicals, but still relatively high compared to a normal diet.

After just a day or so on this new path, I felt so energized, strong and capable, so happy! It took a little while to balance my blood sugar levels until I learned that I wasn’t getting enough fat. I no longer have any blood sugar issues and my impulsive food cravings (usually for a handful of nuts) has disappeared. I can go longer between meals (I had been eating every other hour). I went running yesterday with my babe and daughter. Jason said I’m much more delightful. No more intense die-off, just a little here and there. A shift

I also experience the same energy rush and increased tolerance to food chemicals on a high fat, low carbohydrate diet. And I assure you it has nothing to do with candida and everything to do with the reasons the ketogenic diet is used to treat intractable epilepsy in children. But just like me, this woman is never going to feel truly ‘right’ on this diet.

How are things going lately?

Last week we went out to dinner and I ordered a thai salad. Though everything on it was ok (besides the dressing which I’m sure had sugar in it) the lettuce was raw and my gut is not ready for raw greens. I seem to do ok with a small amounts of fermented veggies like pickled ginger root and pickled garlic and any sauted veggies. But eating raw greens while healing a damaged gut is like eating sand paper, it is very irritating. I felt terrible for about 36 hours after that dumb mistake. My stomach hurts

She’s blaming all of her problems on tiny mistakes like slightly too many carbohydrates or too much fibre, just like I used to. Actually, the problem is the extremely high chemical Thai dressing she has eaten.

Another tragic victim of WAPF’s promotion of quack cures over science.

Written by alienrobotgirl

20 April, 2008 at 3:51 pm

Posted in Probiotics Don't Work

Tagged with , ,

The Weston A. Price Foundation is full of zealots

with 4 comments

I’m making a few changes to the way I spend my time. I am no longer reading a lot of groups, I’m now limiting myself to FailsafeNT. Nothing else. I’m cutting right down on posts, hoping other people will answer questions, and trying to get on with writing some informative articles for Plant Poisons & Rotten Stuff The Website

I’ve stopped reading native-nutrition. I’ve had enough of the pathetic discussions going on over there at the moment – from a vocal minority asserting that homosexuality is a nutrient deficiency disease. I have a degree in social science, so perhaps it is easier for me to tell the difference between the simple thoughts and emotions that people experience which are influenced by food or genetics, and the complex ones that are influenced by social constructs. It’s very easy to be blinkered when you don’t have the full picture and you’ve been raised with a certain attitude.

My favourite quote from the whole, sorry debate:

“I’d also suggest that when someone seems very concerned about adducing scientific evidence that some group of people is deficient in some way, that there is some prejudice behind it.” native-nutrition

I could draw an analogy here, because I was faced with the same prejudices when I tried to explain to the native-nutrition board that food chemical intolerance is NOT a nutritional deficiency disease. Not everything can be or should be “cured” by taking vitamins.

Written by alienrobotgirl

20 February, 2007 at 12:03 pm

Posted in Quacktitioners

Tagged with

New yahoo group for failsafe NT

with 9 comments

Steph from the yahoo NT groups and I have set up a new yahoo group for people interested in discussing food chemical intolerance and the failsafe diet in a high(er) fat, animal food oriented, nutrient-dense, Nourishing Traditions / Weston A. Price Foundation context.

http://health.groups.yahoo.com/group/FailsafeNT/

We have all of three messages to our name at the moment (yey!).

I know I have about 400(!) regular visitors at the moment. I am telling myself that most of those visitors are the googlebot, or by now I would have stage fright. I hope some of you real people who read this blog and are interested in failsafe and/or NT and/or high(er) fat will join the group. I will be there most days to answer questions and discuss things (computer access permitting).

A couple of messages posted on NT boards in the last couple of days have been along the lines of “failsafe didn’t work for us, we ate a lot of white carbohydrate, i.e. rice, bread, etc, and my kids started looking malnourished.”

I hope we can help to correct this, because it’s no way to do the failsafe diet. No failsafe dietician would advise that kind of diet, and I can only think people need a little imagination! I know I feel worse when I eat high carbohydrate and neglect to eat red meat, regardless of the failsafe context.

I can see how amines can make people nervous of meat, but please don’t let this put you off eating properly and finding a good supply of fresh, non-vacuum packed meat. Vacuum packing does not preserve meat (any more than it preserves salad leaves), it allows the meat to decay silently without turning brown. Meat is something that I suspect a lot of people go wrong with. Some, because they don’t have a fresh enough supply of meat, so failsafe never appears to work properly. Others because they give up eating red meat and lose out on a lot of vital nutrients.

Why am I distractedly talking about red meat?! Well, since my car was vandalised I am stranded in Matlock and can’t get out to the Chatsworth farm shop to get some fresh meat. We ran out about a week ago. I have been craving red meat for about four days now. All I can think about is red meat! Nothing is substituting, not shellfish or fish, not eggs, not milk, not pulses and wheat germ, not iron supplements. How on earth I ever managed to be a vegetarian for so long is beyond me. At least I listen to what my body says now.

Back to the subject at hand. We really want to hear from people. We want to raise awareness! We want to make some noise! Heh. It’s ironic that at the same time the failsafe group was set up, an NT thyroid group was set up, and they already have 180 messages. I haven’t read them all but I clicked on a few, and they included complaints of: mysterious bouts of insomnia, nightmares, racing heart, palpatations, fatigue… These people all think they have thyroid problems because of these mysterious symptoms. No they don’t!

Did I mention what tyramine and salicylates do to the thyroid? Gosh I have a lot of work to do.

Written by alienrobotgirl

29 November, 2006 at 9:49 am

Posted in Personal Diary

Tagged with

More adventures in internet land

with 2 comments

Before I went on holiday I was trying to start up some dialogue with the Weston A. Price Foundation on the native-nutrition messageboard. I don’t think it really worked. I had some interest, but in general, people on that board are simply too prejudiced about natural foods vs. artificial foods to consider the idea that fruit and vegetables and aged meat can actually be bad for some people.

I rapidly got sick of nutters telling me I have lyme disease (in my opinion, lyme-disease-misinformation-disseminators belong in the ninth circle of hell, the level below candida-misinformation-disseminators). When are people going to realise that lyme disease testing and treatment is all a big scam? The antibiotics people are put on to treat “lyme disease” give them the symptoms of “lyme disease”. The non-profit websites that have sprung up all over the place are financed by drug companies who are making cash out of lyme disease testing and treatment. The Western Blot tests are appallingly inaccurate (false positives abound in lyme testing). Some people are absolutely convinced that lyme disease is “the cause” of fibromyalgia, chronic fatigue, multiple sclerosis, epilepsy, you name it. No. Lyme disease is the cause of lyme disease. It should not be confused with other conditions.

One woman started emailing me off-board to accuse me of being “hostile” for not accepting her lyme disease theory (after I had given her a sarky reply on-board for her basically calling failsafe a dangerous diet – some people are just horrified by the idea of not eating fruit and vegetables).

I gave up trying to help the original individual who had asked for help and listed her symptoms under the umbrella term “fibromyalgia” (her symptoms sounded much more like classic food chemical intolerance than the fibromyalgia variety). I’m afraid you need to be pretty intelligent to be able to do failsafe, especially without support. Otherwise you are just going to get tripped up by all kinds of things you don’t understand, or you’ll cheat, and you’ll fail before you even get anywhere.

I feel like smacking my forehead every time I go near the messageboards I read. I’m going to have to unsubscribe from most of the groups before I burst with frustration. Native-nutrition is full of individuals who have food chemical intolerance related conditions asking for help (for example, today “head noise” is a topic of discussion, with symptoms like insomnia, crankiness, hypnic jerks and pounding heart beat). But do you really think they would listen to me if I mentioned the word “tyramine” to them? Well, they’d listen until I mentioned the words “elimination diet which cuts out most fruit, vegetables and aged proteins”). It hurts to know there are people out there who could be helped, who simply won’t listen to the answer they’re given because it contradicts their preprogrammed dogma about what foods are “healthy for you”, or because it simply sounds like too much hard work.

For example, there is someone I’ve been in contact with who has a definite self-diagnosed sulphur intolerance issue. Now, if you have a sulphur-intolerance issue, you probably need to try the failsafe diet. The same individual has a huge range of food chemical intolerance indicator symptoms. Now, I can show this person a piece of pure biochemistry, but though I explained to him that his symptoms would be relieved by the diet, he refused to even consider doing failsafe because he would “have to live like a monk”. Ironically, doing everything from juice-fasts to the Optimal Diet does not count as “living like a monk”. I recently sent him some pretty important information about sulphur intolerance, but rudely, he has not replied to me.

A subsection of people who do failsafe regain their tolerance for salicylates after doing failsafe for as little as six months. Apparently six months is too long for some, who would rather “treat” themselves – and their children – based on unproven and sometimes completely erroneous theories. The number of parents of autistic and ADHD children who I have come across who would rather megadose their kids with dangerous and even harmful vitamin formulas or use other dubious methods based on wild stabs in the dark is amazing. By contrast, the parents of such children who write on the sulphur groups demonstrate advanced knowledge of biochemistry, and a real understanding of how to perform controlled scientific experiments. I feel pretty sad for the kids whose parents don’t care enough, or don’t try enough, to get that far.

I think the only way I am going to get the message across is with a dedicated all-singing, all-dancing biochemistry website. Sigh.

It took Sue Dengate something like eight years to be willing to accept that salicylates were the cause of her daughter’s uncontrollable ADHD. I wonder if it will also take WAPF that long?

Written by alienrobotgirl

15 August, 2006 at 2:09 pm

Posted in Talking to the Brick Wall

Tagged with , ,